OT- Hysterectomy
My mom has been on me for years to have a hysterectomy. She had to have one at 32, I am 37 now. My tubes were tied after my daughter was born- so almost 12 years ago. DH and I don't want any more children.
Both my Bio grandmother's died of cancer in their early 60's/late 50's. My mom's bio-mom (mom was adopted) was uterine cancer. My bio-dad's mom was ovarian. My mom had pre-cancer fibroids, which is why she had her's- I guess it was serious which is why she keeps insisting I go to her practice even though her doctor is retired now. My older sister has endometriosis. I have PCOS and currently am dealing with some pain from it. I know I need to go ahead and do it, I made the appointment with the surgeon. I have all the genetic markers to be approved by insurance (I have tri-care, so it's not like the would deny it anyway). I am just scared.
I don't know why I want to continue to play chicken with the disease that kills the women in my family. I don't know why I am hesitating so much! I keep using work as an excuse. Which- is valid. I am the Controller for a contractor who has a very dependent relationship with me. I also keep the books for his wife's real estate business. My boss is awesome but I am relied on heavily, 7 days a week sometimes. I can't leave the local area for more than 8 days. That is the most I can stretch with payroll and financial projections safely and I don't know what my recovery will be like.
Anyway- my fears:
Sex drive- I have a super high one, I don't want to lose it!
Does sex feel weird after having all those insides removed??
How crazy am I going to be? I know you can take estrogen to level you out, but what if I have issues with it or something?
My hair! I have never had a grey hair on my head. I don't have to dye it at all- after all this and the fluctuations in hormones am I going to go grey and start thinning. I know thinning can be a thing after menopause.
I do TERRIBLE under anesthesia. I almost crashed with both of my kids C-sections. My blood pressure drops dramatically and it gets a little cagey in the OR.
I should be good being laparoscopic, but what is the real life recovery time? Will I be able to drive after a week to come into the office for a couple of hours of work?
I realize that these are mostly stupid fears in comparison with cancer. I haven’t even said any of them out loud to anyone, just keep using work as my excuse. I need some reassurances… I know that there have to be some ladies here that have had this done and can help calm my crazy!!
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I dont know too much
I dont know too much regarding some of your questions. My mom had one 7 years ok and it was laparoscopic. They had her stay an extra day or two at the hospital for recovery. And she was definitely not able to return to work for at least a few more weeks as walking etc is hard when you're recovering from a major surgery like that.
You probably won't be able to drive as they're likely to prescribe you pain medication.
BTDT
I had one three years ago (no family history but a gigantic fibroid). I was scared of the same stuff. And here is my experience:
Work
I had to take 6-8 weeks off but I was so bored by day 4 and wasn't allowed to lift anything that I worked from home. I could do that and it kept me busy.
Sex drive
This did change with menopause, which you will go into afterwards (maybe not immediately, but sooner than would be normal). Desire didn't drop off and sensation did not change, but you may need lube as there is dryness.
Craziness
You may go into menopause and it may be faster if your ovaries are removed. They left mine. I have heard that people have had success with hormone replacement with ovary removal to make menopause easier.
Hair
My hair is no grayer now that it was three years ago. It also isn't falling out.
Menopause
I did go through menopause sooner. Not sure if the hysterectomy contributed to it cycling (would go months without any "side effects") but it seems to be over now and other than feeling like my upper body is melting into my hips and buying one size up in pants, it seems to be stable. You may not notice menopause being any different from being a step mother.
Anesthesia
I also do horrible under anesthesia. Tell them. Give them examples. They gave me the minimum possible AND that glorious antinausea patch on my neck.
Laproscopic
I had laproscopic. Was supposed to be 3 hours, ended up 6 hours because of the grapefruit fibroid. You shouldn't have that problem since you are going in as preventative. And you'd have to get right up to my stomach to see any scars. They did a good job.
Driving
They made me wait three weeks. You may need to get someone to drive you if you want to go in after a week.
DO NOT PUSH IT
All I did was try to tuck in a sheet in the bed about a week after and that tiny bit of lift I gave the mattress caused me to pull a muscle in my stomach.
I should have done this last
I should have done this last year. DH is back on sea duty so I am going to be on my own a lot. At least my kids are all teens (well, my DD is 11 but she keeps the older boys in check) LOL
I am just going to have to depend on them a lot and get a work station set up in my bedroom from the sounds of it. At least my office is less than a mile from home so I can have my receptionist run back and forth to bring me things, I guess....
Thank you all for calming my fears some!
Wait, less than a mile?!
You are going to be asked to walk a little each day to get stronger. You may be up to two miles (one each way) toward the end of week two. The walk would be good for you and easy and you can get to work. (But you should not carry a laptop if it's heavy. And get a backpack carrier for a while. That was easier on my stomach than a briefcase strap style.)
This is long and probably a
This is long and probably a lot more info than necessary so I won't leave it up long but I wanted to touch on all of your questions as best I could.
All I have left are ovaries. The rest was removed, laparoscopically, in 2015. I was 35. I went through a chemical menopause in order to shrink a tumor down enough to allow for laparoscopic once biopsies showed no sign of cancer. Major side effects from that were gone about a month after last round of injections but it took much longer for things to regulate - I would say it's only in the last year or so I've gotten closer to "normal" and there are some things I don't expect to ever fully recover.
Outside of the prepping for surgery I've not had any hormone treatment - ovaries are doing just fine. During the months leading up to surgery I had some crazy hot flashes and memory loss. Uncomfortable but not unbearable. Severity increased as suppression progressed, though.
Surgery was several hours longer than anticipated so I was in the hospital overnight but only due to procedural cut offs. Had we not run hours over I'd have not needed oxygen and we could've done the whole no dye in the urine check much earlier. No major complications, cath was out a little under 10 hours from surgery and I walked myself to the bathroom no problems. I walked out of the hospital unassisted about 15 hours after surgery, and part of that was sitting around waiting on paperwork. Laughing or heavy coughing meant someone putting their weight into a pillow over my stomach. Which of course made laughing that much more hilarious. I got in the habit of just having weight on my stomach when I was lounging around.
Follow up appointment was at the two week mark. Nothing heavier than a gallon of milk -though during the second week I did not follow that - and no driving. Only other restriction that I can think of was no sex. I drove myself to my follow up and after a scolding from doc about the weight restriction I followed the gallon of milk rule another two weeks but had the okay on driving as long as I wasn't an idiot. Internal stitches had to hold, if they didn't going in and fixing it meant a large incision was the threat that made me behave.
Doc was okay with me going back to work whenever I wanted (office) as long as I wasn't the one driving prior to my two week check-in. He was still hesitant on my driving but told me to use my judgment. So I worked remotely until I had that blessing. The brain fog slowed me down work wise more than the cabin fever. Everyone swears I was pretty even keel but it was obvious I was uncomfortable. I didn't feel any crazy and from what I'm told didn't exhibit any.
Prior to I had no grays. I have a streak now. Can't say it's due to the hormonal mess I put myself through or if it was going to happen anyway (I'm in line with a few family members). I have light hair so you have to look for it anyway. No thinning whatsoever.
Sex drive did decline but not while I was suppressing hormones. I saw no change during that time, didn't happen until my little friend was removed and I was on the mend. It has gotten better as things started to level out and regulate but I am under no illusion that it will return to its prior insanity. I'm somewhere slightly above average now. Although now that I say it, we didn't follow the no sex for two weeks rule, either. As for anything literally feeling off I haven't noticed any pain, weird or new sensations or anything like that.
I'm pretty sure I still have my discharge papers somewhere because like a weirdo I kept all of my images. I can double check dates and instructions if that would be helpful. I'm totally cool with sharing the details or answering any questions just shoot me a message.
Thank you so much! This
Thank you so much! This actually really helped calm my nerves!!
Not a problem! It was only 4
Not a problem! It was only 4 years ago but feels like a lifetime ago so there may be some things I'm forgetting. I'll dig out my papers tomorrow after work and see if there's anything big I missed.
I had a lot of obnoxious, but not painful, symptoms before I was able to have the surgery. Doc hesitated to do it because I was under 40 but he also admitted that simply removing my friend was going to destroy my uterus anyway so I won that battle. Ha!
As for the healing and downtime, I think the relief from what I had grown so used to made anything else seem insignificant but I truly don't remember any real pain or major discomfort. They did discharge me with a few pain meds that I never felt the need to take. The having my belly pumped full of gas for the surgery was not terribly comfortable for a day or two afterwards - it took several more days for it to completely dissipate but it was only an obvious feeling the first couple days.
The surgeon I went to was awesome. I had some demands - like I didn't want to have to take hormones, I didn't want a huge abdominal incision (or the healing that goes along with it) and he was not allowed to use power tools to chop up my friend to get it out - I didn't want to take the chance of any tiny piece being left behind. He took all of my nonsense in stride and even out did himself by leaving me with just the one incision at my belly button. He's apparently something of a pioneer or evil genius in robotic assisted obgyn, I'm more than happy to send you his name/practice info for your own research or for your doctor to speak with.
The hardest part for me was the brain fog - which I think I'm still experiencing a tiny bit, my memory isn't the steel trap it was beforehand. One of the injections I was taking in preparation is said to take several years to fully bounce back from and be rid of so I chalk it up to that. That and the slight decrease in sex drive are the only lasting effects - but they've been gradually improving as time goes on. If this is as good as they get I've got no complaints as the changes haven't been drastic.
I know our circumstances are different - and of course everyone's experiences and risks will differ - but honestly it was nowhere near as taxing or difficult as I was expecting. Don't hesitate to ask if there's anything I can help with.
Thank you again! I guess the
Thank you again! I guess the woman I am seeing has a 95% success rate with lapcroscopy, so I am pretty confident that I will be fine there with minimal scaring or incisions. Mine is mostly preventitive but I do have to lose my ovaries. They are what causes me the most problems. Like right now I can feel a giant cyst and even moving certain ways hurts like the devil. Sex is about out of the question, which sucks. I have all the fun of PCOS- difficulty maintaining weight (I am lucky that I am not teriibly over weight, but am in that constant need to lose around 10 lbs), skin issues, overly emotional, when I do get a period 2-3 times a year, I want to DIE. So, Like you wanting to lose your "friend" <-- love that btw, I can't wait for those suckers to get yanked!!! LOL that is the only positive, I know that the pain of the surgery will be difficult, as will missed work, all the other side effects- but knowing that I won't have to deal with all the rest is really comforting.