You are here

Oh hell no I don't think so.....

dledden's picture

Submitted by dledden on Fri, 04/13/2012 - 4:36pm

Forums: 
General Discussion

Fiancee and I just took SS8 to his first appt with a nephrologist (kidney dr.) after his dna/chromosome labs from neurology (for his autism) revealed he has autosomal dominant polycystic kidney disease.

So, we are signing him in and the woman asked fiancee and I to go over all the info to make sure it was correct. On the form under contacts it said 'shannon xxxxxx' my fiancee's LAST NAME (and no they were never married) as Mother and listed fiancee's parents as her phone number!!!!! I almost blew a gasket! She hasn't raised this child since he was 2 yrs old, and he hasn't gone to this hospital in any capacity until the past year or so when he started going there for his vision (pediatric opthamology). So, I wanna know how in the HELL they got her name on his records to begin with, i'm guessing it probably came from the pediatrician's office where she was once listed as a parent. But, they were never married so how she was listed with fiancee's last name is beyond me.

Anyhow, I started scribbling out her name, phone number, etc. from the records. Fiancee was laughing at me, and totally on board with my erasing any and all info relating to her as a parent off these medical contact forms. (Biomom is a heroin shooter/addict among other things, for those of you who don't know) and hasn't been involved in ss8's life for over 6 years!

Anyhow, just had to VENT my frustration about the event......because as most of you know ss8 wouldn't be getting ANY medical treatment of any kind if it wasn't for me Smile

so, turns out that ss8 has the 'deleted' gene for adpkd which is the 'worse' way to have it. apparently you can have a partial deletion or a full deletion. partial is much better outcome than full deletion. they are going to do a kidney ultrasound just to check now for any cysts, but his urine and bloodwork was all normal as was his bloodpressure so for now that's a good sign Smile

i wish medical professionals/offices would understand that sometimes stepparents know MORE about children than bio parents and give us the respect we deserve!!!

ThatGirl's picture

Submitted by ThatGirl on Fri, 04/13/2012 - 5:16pm

I really hate how doctor's offices seem to always get all of their info screwed up and mashed together. You'd think they'd have to be more careful because of HIPPA laws.

I get phone messages from BM's dentist with appointment/payment reminders for her. She has NEVER lived at this telephone number, it's been mine for more than 20 years.

Kilgore SMom's picture

Submitted by Kilgore SMom on Fri, 04/13/2012 - 5:23pm

It pisses me off too. I took my ss7 to his dentist appt. 2 months ago and they still have Bm name listed. I said something about it, but in order for it to be changed DH has to do it. This whole time they thought I was his Mother. BM only took him once about 4 years ago. BM is a meth. head. So I totally get where your coming from.

my.kids.mom's picture

Submitted by my.kids.mom on Sat, 04/14/2012 - 1:24am

The bm's name should only be removed if they do not have joint custody. I understand the emotional impact on you, the real caretaker, but legally, she has rights to get his records unless the father has sole custody. And then sometimes, they still have rights to that info, depending on the state.