A typical week
Its still pretty crappy, but at least it didn't get worse. Ss has been doing the online school this week. We hired a "nanny" to watch him while we work. She has been really great. She is very understanding. WHich helps because Ss refuses to answer any of her questions.
Ss still hates our guts. And he looks like we are going to kill him every time we come near. My Dh feels like a monster (his words) for how he acted last week. Ss will need to do school in summer to make up all the time he missed. Its good in a way. At least he'll have something to do.
And Ss lost all the weight I was able to make him gain. It really frustrated me. I went out of my way making sure his food servings have more calories. All for nothing.
Ss has officially been diagnosed with having fecal incontinence yesterday. I don't mention it much but Ss has had accidents in his bed at least once or twice every two weeks. We have gone through 4 mattresses now. We use multiple layers of sheets. My Dh refuses to put rubber sheets. He says its not fair to Ss. Which I understand. But mattresses are expensive. Thank goodness we make good money. Ss has a weak anal sphincter caused by the abuse. He can't feel when he has to go. He usually sits on the toilet 3 times a day to avoid accidents. And it usually works. But he does have accidents overnight. And if he's taking laxatives, there a 90% chance it happens. Most of the time he cleans up himself. When we try helping he just screams at us. He called me the c word once, which hurt.
So now we have to try external electrical stimulation to strengthen the sphincter muscles. We have another appointment in 2 weeks to see how to do it. What the heck are we supposed to do? Ss doesn't know about it yet. Maybe we should get a nurse. Maybe he can do it himself. I'm sure he would prefer that. My heart aches for what he has to go through. But at the same time I feel scared thinking about the next appointment. If the stimulation doesn't work, its surgery. Which we really don't want to do.
- praying's blog
- Log in or register to post comments
Comments
Oh, :,( I've read your
Oh, :,(
I've read your story.
Have you spoken with the therapist about the sphincter thing? I almost wonder if being knocked out for surgery would be better than having his anus stimulated (given his horrific history with that area.) OMG, I just can't think of how he can possibly take this, too.
Instead of plastic sheets, they make really nice mattress covers that have a waterproof backing. It soft and quilted and padded on top, just the very bottom layer is impermeable. I got one for our bed because it cost a fricken fortune and we like sex! I didn't want it ruined
Are you just able to replace
Are you just able to replace the quilted top? We normally buy the mattresses from Costco.
Oh my gosh, I imagine the
Oh my gosh, I imagine the electrical treatment would be completely traumatizing for him after the abuse. I hope he can do it himself. I would almost opt for the surgery, at least he's put under and it's all over with in one shot.
This poor kid!! These people
This poor kid!! These people really ruined his life!! They should be left in jail for the rest of their lives. How does he feel about not going to school everyday? At least he is away from the bullies. That is not good for his self esteem.
I feel so bad for all that you guys are going through. I could not imagine having to deal with this. I'm sure he will not be happy if he has to have surgery or even about the electrical stimulation. Hopefully its something he can do himself, but will he actually do it?
Thanks for the kind words
Thanks for the kind words guys. The therapist knows about the sphincter. Not sure if they talked about it yet. We really don't want to do the surgery. It is risky and it might not be very effective. It is our last resort.
The bastard who did it will be in jail and will likely die there. Ss's evil mother gets out in a few years. Dreading that with every fibre of my being.
Ss just sits there and does the online lessons. No resistance. He hasn't spoken to us. His silence can go on for weeks before he gets upset enough to start yelling. I sometimes forget what his voice sounds like.
I hope he will do the stimulation himself. I am sure he will if he knew my Dh would have to do it for him otherwise. We are truly hoping it makes a difference. It is not fair that this happened to him
We tried a therapeutic school
We tried a therapeutic school starting of this year. Did not go well. All we got out of it was him worse than before, hating us, and no longer trusting us. There is an alternative school here but it is for delinquents. So we cant sent him there. And he wont tell us what he wants.
It's hard not to feel guilty. All the warning signs were there. Of course we aren't going to let him just isolate himself. THat is the therapist's main concern. But it's hard
Go to mattress firm. They
Go to mattress firm. They sell a mattress protector that is absolutely fabulous. We have one on our bed and you wouldn't know it was there. Completely waterproof. It's saved our mattress so many times from toddler accidents, cat hair balls, blood, you name it.
http://www.nafc.org/bladder-b
http://www.nafc.org/bladder-bowel-health/types-of-incontinence/fecal-inc...
scroll down to sacral nerve stimulation