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Ever have days when you're so angry at the world you could scream?

SMof2Girls's picture

Submitted by SMof2Girls on Fri, 08/31/2012 - 2:11pm

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I shouldn't have come to work today.

I got the email from my sister and I should've just stayed home.

"We found out that Emma has a type of Leukodystrophy called 4H Syndrome. It's a degenerative genetic disease. Every child who has it is different, so I can't even really look at other people and figure out what to expect. All we know is that at some point, she will start to lose abilities. Life expectancy is shortened."

Why the f*ck does this happen to GOOD kids? She's 9 freaking years old. I can't think about anything else. I've tried doing other things, responding to other posts, and it's just consuming my brain.

She's not even my kid .. just my niece, but right now I feel like every stupid little argument I've had with DH, skids, or BM is so completely stupid and petty. It puts everything into perspective, but at such a polar opposite.

It's like this feeling that you're so overwhelmed that you want to scream at the top of your lungs so the world will stop and take notice of this injustice. But it doesn't. Just keeps on going along.

I just want to crawl into a hole.

/end rant

Most Evil's picture

Submitted by Most Evil on Fri, 08/31/2012 - 7:30pm

Oh I am so sorry honey. I hope she is one of the lucky ones?!!

Not being flip, not sure what to say ... it is true we never realize what problems are until something like this happens, a difficult lesson to learn. Sad

Shieldmaiden's picture

Submitted by Shieldmaiden on Tue, 04/12/2022 - 1:45pm

I am so sorry. I have felt this way when someone died that I felt was a "purely innocent soul". It made me angry at god/the universe that the innocent are allowed to suffer and die, when terrible people walk around ALIVE every day. How is that fair? I understand your anger. It took me a month or so to work through my anger. It helped to talk about it with someone who understood me. I wish you well and please know that you are not the only one. You are not alone. You will get through this one day at a time. Be kind to yourself. 

Rags's picture

Submitted by Rags on Wed, 04/13/2022 - 12:24am

And yes, I have had those days.  The first when I lost my youngest brother nearly 50 years ago. He passed at 10mos from Spinal Minengitis.  I was 9.  I miss him more every day.  He would be so proud of his older brother who was 2 when the baby passed. 

Most recently today. When I was once again confronted with work ineptitude and idiocy.

Give me the work version every single day and let the babies be healthy and happy.

Even more sad is that the kids with impeccable beautiful souls seem to be the ones who suffer with these tragic illnesses. The toxic ones seem to always be bullet proof.

My prayers are with you and your family.

And yes, I have had those days.  The first when I lost my youngest brother nearly 50 years ago. He passed at 10mos from Spinal Meningitis.  I was 9.  

Most recently today. When I was once again confronted with work ineptitude and idiocy.

Give me the work version every single day and let the babies be healthy and happy.

And yes, I have had those days.  The first when I lost my youngest brother nearly 50 years ago. He passed at 10mos from Spinal Meningitis.  I was 9.  

Most recently today. When I was once again confronted with work ineptitude and idiocy.

Give me the work version every single day and let the babies be healthy and happy.

Even more sad is that the kids with impeccable beautiful souls seem to be the ones who suffer with these tragic illnesses. The toxic ones seem to always be bullet proof.  Not that I would wish this type of thing on any kid. But……..

My prayers are with you and your family.