You are here

I'm through.

PollyMcAnna's picture

My husband and I are an elderly couple. I have RA. My husband has MS. He is completely paralyzed except for his left arm, and has been confined to a hospital bed for several years. It sounds like a sad situation, but, no, it isn't. We love each other so very very much and are grateful to have each other. We've been married ten years now. I have five adult children from two, long-ago, previous marriages. They like my husband a lot and are happy for us to be so content together. My husband has three adult children. They are NOT happy.

My husband was divorced and lived alone for thirteen years before I came into his life. During those years, his three children lived nearby but seldom visited their father although they were aware that his MS was growing steadily worse and he was becoming more and more handicapped. It was only after I appeared on the scene they discovered they had a deep love for their father.

After we married, we continued to live near his children for more than two years, during which I was given the "treatment." Anything they could do to promote the feeling that THEY were important and I was not, but if I wanted to hang around and take care of their father according to their instructions, well ... it was okay with them. As long as I knew my place and stayed in it. Problem was ... I believed my place was firmly beside my husband as his wife, not hanging around the fringes as his faithful servant. (yes, that's bitterness you hear in my voice.) (long sigh here)

Money was never a factor. My husband and I both owned homes and cars and were debt free when we met. Both of us had a little bit of savings. Actually, I may have had a bit more than he had back then. Thank God there are no big insurance policies waiting in the wings today. I can't be accused of being a fortune hunter. I can only be accused of insanity. Some days I think I just may be. Insane, I mean.

We moved to another state seven years ago, I thought the distance would solve our problems. I was wrong. His children visited just often enough to re-establish who was important and who was not. I was not.

A few months ago, my husband's son forwarded an "innocent" little message from his mother to his dad. It gave the impression they were still a family unit ... mother, father and three children. I was odd man out. I was nothing. That message arrived just as I had finished cleaning up my husband's bed and body after a distressing BM situation. Suddenly, I was through. I was through taking good loving care of a helpless man who worshipped and adored people who were hostile toward me. I was through and I told my husband I was through. It was them or me. He chose me. But did he really? Ah, I'm waiting for the other shoe to drop. His children have enormous power and they know it. Wherever they are right this minute, they don't have a worry in the world. They know ... they KNOW ... they have only to call him and he'll crumple.

He sent a letter to his children stating that if he became sick enough to go to the hospital (which happens often with MS) he had instructed me to notify his sister only. Not his children. And if he died, I was to notifuly only his sister. He told them he was forwarding a copy of the letter to his sister so his wishes would be clearly understood. Is that legal? Please God don't let him get sick or die. Because I truly do love him, and also because I'm afraid of the nightmare I'd be left to face. Young strong hostile stepchildren. I'm no match for them anymore.

My husband loves me. But he loves his children more. I understasnd. I love my children more too, but mine aren't tormenting him. I wouldn't allow it if they tried, and, anyway, mine are too kind-hearted to be mean.

I love my husband but I despise his children. And I fear them. I trust my husband, but not enough to believe he will stay loyal to me against his children. Oh, the cruel power they possess.

And so I wait ...

sixteensmom's picture

Have a will drawn up with his exact wishes, at once.
Copy to skids and sister.
And a letter to the children telling them in no uncertain terms that they will respect his wife from this moment forward or stay out of his life forever and never see a dime of his estate as it is ALL being left to YOU and when YOU die if you see fit you MIGHT leave some of it to his children, IF they are respectful post haste.
Your comment that he loves his children more, and you love your children more, concerns me.

I love my kids, with all my heart, but they are adults with lives and families of their own.
I love my husband more. He is my priority and my life.

Sweet T's picture

OMG I feel so bad for you. Why do people have to be this selfish. We used to live next door to an older couple in their late 60's early 80's. The husband's wife passed away & he ended up marrying her 1/2 sister. She took excellent care of him and we hardlt ever saw his kids ( one daughter lived 2 miles away) The 2nd wife always told me if he dies the kids ( she was their freaking aunt ) would kick her out. He ended up giving his kids his house & 2nd wife bought a townhome that they live in now. I firmly believe that it is because of her love and companionship that man is still alive.

I also have MS and when I hear stories like your husbands... well my heart breaks for both of you. You are a wonderful woman for the care and support you give him. Does he do any form of drug therapy? I do copaxone injections daily.

I hope he is strong for you and doesn't crumble.

PollyMcAnna's picture

Thank you ybarra, sixteen, sweet and bea ... I appreciate your comments. It helps just to know I'm not alone.

Ybarra, I hear what you're saying, I'll go to my daughter's home if (when) I feel threatened.

Sixteen, I may not have put my feelings into the most acceptable words. My husband is the center of my world.

Sweet T, about MS treatments ... I have a blog ... http://thebestfivearemine.blogspot.com/ If you have time to scroll back through it, there's a writing about my husband titled, "Before the Fall" It talks abut the last hunting trip he was able to go on in the mountains of Wyoming. It also lists the treatments he tried after he was diagnosed with MS in 1986. I do take good care of him, but I often feel inadequate. We have a tiny apartment. A good thing because I could no longer keep up a big house. My husband's bed sits right square in the middle of the floor in what was meant to be a living room. A giant wall TV is directly across from his bed. We don't own a sofa and neither of us cares a hoot! We have a hospital room. He is the center of our life. In ten years, I've spent only two nights away from him. Both those times I was in the hospital myself. I don't feel the least bit of "caretaker burnout" ... I don't need a break. I don't need respite. I just need to be able to relax and stop living in dread of his children. (I hate to sound like I'm feeling sorry for myself, but that's exactly the way I sound because that's exactly what I'm feeling right this minute.) (smile)

SugarSpice's picture

at least you and your husband love each other. vows of "in sickness and in health" is not taken seriously enough these days. all too often a spouse whose health makes him or her inconvenient is ditched.

it is sad, but i am the last person dh thinks of when the going gets tough. the skids and his parents come first. i have chosen not to care anymore. adult skids have more power that the wives.

even now, i am ill and going through tough times at work and all the dh can do is bellow about small things.

i truly dont care anymore.

jeaniemarie's picture

I am sorry to hear that you are going through this. My fiance has MS, and I watched my grandmother suffer with RA for 40 years. You need to keep your stress level down, and dealing with those step-kids of yours in a MAJOR stressor. I don't blame you for putting your foot down. Make sure you have good documents and an attorney on retainer just in case the worst happens. *hugs*